Charlie’s Angels And My Chronic Illness

Charlie’s Angels And My Chronic Illness

Awareness, Chronic Illness, Fibromyalgia, Research
It’s going to sound absurd, but Charlie’s Angels prepared me for life with multiple chronic illnesses. I may have been born in the late ’60s, but I am a child of the ’70s! One of my favorite television shows of the seventies was Charlie’s Angels.  Not only did I never miss an episode, the following day I would make my friends act them out with me! For those of you who are not familiar with this show, Charlie had a private detective agency and he hired three sexy women that he called angels.  The original angels were Farrah Fawcett as Jill Munroe, Kate Jackson as Sabrina Duncan, and Jaclyn Smith as Kelly Garrett.  They were badass women kicking butt and uncovering mysteries. I wanted to be an Angel, Jill in…
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HOW TO SPOT SOMEONE WITH A CHRONIC ILLNESS

HOW TO SPOT SOMEONE WITH A CHRONIC ILLNESS

Awareness, Chronic Illness, Fibromyalgia, Research, Symptoms
Do you know how to spot someone with a chronic illness? Grab your binoculars, looking glasses, and detective kits, because today I am going to share how to spot someone who has a chronic illness! Make sure you have a pen and notepad ready to take notes because what I am about to share will help you spot one of these mythical creatures with your own eyes!! Are you ready to begin your chronic illness manhunt? Then let’s get started. Just Kidding! If you haven’t figured it out by now, I am just yanking your chain. There is NO way to spot a person with a chronic illness without getting to know them. I am sure you have heard the phrase “You don’t look sick”. Those of us who ARE…
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5 Benefits of Walking Indoors with Fibromyalgia

5 Benefits of Walking Indoors with Fibromyalgia

Awareness, Chronic Illness, Fibromyalgia, Research
Before greatly reducing my daily chronic pain level, I worried about how far or long I could be away from home. The fears that my chronic illnesses created prevented me from getting on my feet and giving my body the exercise it needed. Then I learned the benefits of walking indoors! 1. Rest stop When walking outdoors, it is difficult and often impossible to find somewhere to rest.  Sure you could sit on the curb, but depending on the weather the cement may be too hot, cold, wet, or dirty.  Then there is the task of getting up and down from the curb….. When you walk indoors you are rarely far from a place to rest your feet.  If you are walking on a treadmill or around a track at…
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Can hypermobility increase pain in Juvenile Fibromyalgia syndrome?

Can hypermobility increase pain in Juvenile Fibromyalgia syndrome?

Awareness, Chronic Illness, Fibromyalgia, Research, Symptoms
Pediatric Rheumatology Online Journal, 2012, states Juvenile Fibromyalgia (JFM) is correlated with 40% of children and teenagers who also have benign hypermobility (HM). In fact, in adults hypermobility is an often seen comorbid condition. Pediatric Rheumatology, however, undertook an observational study to see if the hypermobility affects the pain experience of adolescents with juvenile fibromyalgia. It must be mentioned that juvenile fibromyalgia is a relatively new area. Often the reason it took people a decade or more to be diagnosed it because early symptoms were ignored, puzzled over and passed on leaving the patient to continually get worse and eventually get diagnosed in their twenties if they were lucky.  So there has been a great deal of progress to see people acknowledging the syndrome presents far earlier than they had…
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Camping adventures

Camping adventures

Awareness, Chronic Illness, Fibromyalgia, Research, Tips
Squirrel!!! Sorry, this little guy amused the heck out of me. I took at least fifteen shots of him going up and down this tree to get little pieces of bread. I’m easily amused. Clearly, I’ve found a hobby for when I retire. So three days of Camping Adventures was about as much as my body could take But it was better than it could have been. Potentially it could have been quite painful because I knew those inflatable bed things can flare up every tender point on you in the nastiest of ways in one night. Tip #1: Thick inflatable mattress and one of those foamy things on top. It worked awesomely. I had some strange bruising after day three and I ached all over moderately but the most…
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Fickle Fibromyalgia: my pain flare stories

Fickle Fibromyalgia: my pain flare stories

Awareness, Chronic Illness, Fibromyalgia, Research
Venturing out of my abode got me thinking about fickle fibromyalgia pain. Recently I have been thinking about the variety of FM symptoms because some of them overlap with chronic migraine symptoms such that I don’t know which is the cause… such as vertigo; migraine-associated vertigo or FM related vertigo, or the balance problems and even the sensitivity to sound and light. Thing is FM came first and migraines later and then chronic migraines so no matter how much my neuro wants to label everything chronic migraines he is actually just saying things doctors had actually labelled everything fibromyalgia before. But my trip and any trip actually or any unexpected activity remind me of the fickle fibro pain. How it can hit like lightning in any muscle group or all…
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Job interview, migraine fog, and bad word days

Job interview, migraine fog, and bad word days

Awareness, Chronic Illness, Fibromyalgia, Research, Symptoms
I find bad word days to be annoying… like my brain is stuttering and simply cannot find words. Which leads to trailing sentences, inability to name objects and word substitutions. Word substitutions can be quite amusing and you have to wonder how the brain came up with the choice, as semantically totally off the mark but rhythmically rather similar. Half the time people hear what they expect you to say and don’t even catch it when you say something similar, but when they do, not a big deal and even worthy of a giggle or two. Inability to name objects just makes conversations a little longer as you use descriptors to describe the commonplace object your brain forgot the name of. Trailing sentences, when your brain forgets what it was…
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Invisible Disability Awareness

Invisible Disability Awareness

Awareness, Chronic Illness, Fibromyalgia, Research
We are embodied beings. All of us. But what then is distinct about the lived experience of pain? What is it like to have your life and choices filtered by pain, limited by pain and yet be invisible to others? I will tell you what it is like. It sucks. Yes, it sucks. There I said it. Like so many others with invisible disabilities I have danced, no, shuffled through life with this awesome mask of well being on. This carefully constructed façade I wear so that I do not exhibit any of the pain behaviors that would make others know I am in fact in pain. There are so very many reasons why we create these masks. First of all, to look like I am suffering all the time,…
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Mindfulness therapy may not be effective for managing fibromyalgia

Mindfulness therapy may not be effective for managing fibromyalgia

Awareness, Fibromyalgia, Medication, Research, Tips
Mindfulness therapy may not be effective for managing fibromyalgia In a recent study, fibromyalgia patients using mindfulness-based stress reduction, such as practising yoga, showed no significant improvements in either physical symptoms or emotional well-being.A program aimed at easing stress with meditation and yoga may not be much help for people with the chronic-pain condition fibromyalgia, a recent study suggests.The study, published in the journal Pain, looked at the effects of so-called mindfulness-based stress reduction — a technique developed by researchers at the University of Massachusetts in 1979 that combines mindfulness meditation and gentle yogaFor the new study, researchers led by Dr. Stefan Schmidt, of the University Medical Center in Freiburg, Germany, tested the program’s effects among 177 women with fibromyalgia.They found that women assigned to the mindfulness program showed no…
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Fibro Flare: Canada Day

Fibro Flare: Canada Day

Awareness, Fibromyalgia, Symptoms
My man and I went out to see the Canada Day concert and Fireworks.  I was determined to do so despite the migraine I had that morning.  One of those times where I simply demand I do something I want for a change and not let my fricken head make the choice.  Migraine basically was kept at a low level so that is all good.  Loved the fireworks… and some of them remind me so much of my migraine visual aura that I have to point it out, ‘There! That one!  Just like a migraine aura!’.  Not like anyone can understand what that looks like unless you find something that does. Click Here to Visit the Store and find Much More…. Now here is the thing.  Where they do the…
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