HOW TO SPOT SOMEONE WITH A CHRONIC ILLNESS

HOW TO SPOT SOMEONE WITH A CHRONIC ILLNESS

Awareness, Chronic Illness, Fibromyalgia, Research, Symptoms
Do you know how to spot someone with a chronic illness? Grab your binoculars, looking glasses, and detective kits, because today I am going to share how to spot someone who has a chronic illness! Make sure you have a pen and notepad ready to take notes because what I am about to share will help you spot one of these mythical creatures with your own eyes!! Are you ready to begin your chronic illness manhunt? Then let’s get started. Just Kidding! If you haven’t figured it out by now, I am just yanking your chain. There is NO way to spot a person with a chronic illness without getting to know them. I am sure you have heard the phrase “You don’t look sick”. Those of us who ARE…
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Fibro Life may be tough, but so are you

Fibro Life may be tough, but so are you

Fibromyalgia, Research, Symptoms
Life with one or more chronic illnesses is tough. Life with chronic pain is tough. Life, whether you are chronically ill or not, is tough. But I have news for you! You are tougher!!!! Yes, that is right.  I know that there are times when you don’t feel tough.  I also know that there are days when you truly lack physical strength, but that doesn’t mean that you aren’t tough. As long as you are fighting for your life, looking for ways to improve it, finding joy in every day, and not giving up, YOU ARE TOUGHER THAN YOUR ILLNESS OR CHRONIC PAIN! I know that taking a nap may feel like your illness has won, but it isn’t true.  You win when you acknowledge that your body needs to…
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100 Symptoms of Fibromyalgia

100 Symptoms of Fibromyalgia

Chronic Illness, Fibromyalgia, Symptoms
There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I’m posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn’t just muscle pain… it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories… like the cognitive dysfunction, which is a broad one that has more than one symptom and we often…
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Can hypermobility increase pain in Juvenile Fibromyalgia syndrome?

Can hypermobility increase pain in Juvenile Fibromyalgia syndrome?

Awareness, Chronic Illness, Fibromyalgia, Research, Symptoms
Pediatric Rheumatology Online Journal, 2012, states Juvenile Fibromyalgia (JFM) is correlated with 40% of children and teenagers who also have benign hypermobility (HM). In fact, in adults hypermobility is an often seen comorbid condition. Pediatric Rheumatology, however, undertook an observational study to see if the hypermobility affects the pain experience of adolescents with juvenile fibromyalgia. It must be mentioned that juvenile fibromyalgia is a relatively new area. Often the reason it took people a decade or more to be diagnosed it because early symptoms were ignored, puzzled over and passed on leaving the patient to continually get worse and eventually get diagnosed in their twenties if they were lucky.  So there has been a great deal of progress to see people acknowledging the syndrome presents far earlier than they had…
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You are not your illness?

You are not your illness?

Chronic Illness, Fibromyalgia, Research, Symptoms
You are not your illness I always have a bit of a problem with these statements. On the one hand, yes, I don’t want to be defined by my illness and the pain is not all that I am by any means. I acknowledge the pain limits who I am… by that I mean a certain level of pain sort of muffles the personality. It does not let you to the surface and that is why a certain level of pain is difficult to mask from loved ones… because they can tell your personality has been dulled around the edges and you are simply not all there. But that is pain and by its nature that is the way it is. No one would be any different it just so…
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Fibromyalgia and chronic pain in danger of being labeled a mental disorder

Fibromyalgia and chronic pain in danger of being labeled a mental disorder

Chronic Illness, Fibromyalgia, Research, Symptoms
There has been a great deal of concern over the addition of Somatic Symptom Disorder’s (SSD) addition to the Statistical Manual of Mental Disorders (DSM) because of the potential for people with invisible disabilities to be misdiagnosed with this vague mental disorder. In the past, there has been a very significant stigma associated with Fibromyalgia people have faced with their doctors and some of the stigma remains today. It is this idea that you do not have Fibromyalgia at all it is ‘all in your head’ or you have depression. It was common not too long ago to have doctors brush patients off, to have them simply not believe them and for diagnosis to take up to a decade as a result. This has caused many people early on in…
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The scary truth about our pain problem- Canadian Chatelaine article

The scary truth about our pain problem- Canadian Chatelaine article

Chronic Illness, Fibromyalgia, Research, Symptoms
The scary truth about our pain problem““In Canada, pain is under-recognized and under-treated,” Lynch says. “And that’s all pain, whether it’s due to trauma, surgery, illness or disease. It includes pain in the community, in our hospitals and in our emergency rooms — it’s a huge problem.” And it’s a problem that has a lot to do with how easy it is to dismiss a condition we can’t see. A nationwide survey by the Canadian Pain Coalition found 53 percent of us don’t believe chronic pain exists. On the other hand, an Angus Reid Poll found 70 percent of us believe that there is intelligent life on other planets (and 54 percent think extraterrestrials have already paid us a visit). So…aliens from outer space? Sure. Chronic pain? No way.” It…
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Job interview, migraine fog, and bad word days

Job interview, migraine fog, and bad word days

Awareness, Chronic Illness, Fibromyalgia, Research, Symptoms
I find bad word days to be annoying… like my brain is stuttering and simply cannot find words. Which leads to trailing sentences, inability to name objects and word substitutions. Word substitutions can be quite amusing and you have to wonder how the brain came up with the choice, as semantically totally off the mark but rhythmically rather similar. Half the time people hear what they expect you to say and don’t even catch it when you say something similar, but when they do, not a big deal and even worthy of a giggle or two. Inability to name objects just makes conversations a little longer as you use descriptors to describe the commonplace object your brain forgot the name of. Trailing sentences, when your brain forgets what it was…
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New criteria proposed for diagnosing fibromyalgia

New criteria proposed for diagnosing fibromyalgia

Chronic Illness, Fibromyalgia, Research, Symptoms
“The tender point test also has a gender bias because men may report widespread pain, but they generally aren’t as tender as women. Fibromyalgia may be under-diagnosed in both men and women because of the reliance on 11 tender points, and also due to failing to account for the other central features of the illness,” said Katz. Additionally, due to the confusion regarding the tender point test, the authors note that most primary care doctors don’t bother to check tender points or they aren’t checking them correctly. Consequently, fibromyalgia diagnosis in practice has often been a symptom-based diagnosis. The new criteria will standardize a symptom-based diagnosis so that all doctors are using the same process. The tender point test is being replaced with a widespread pain index and a symptom…
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Fibro Flare: Canada Day

Fibro Flare: Canada Day

Awareness, Fibromyalgia, Symptoms
My man and I went out to see the Canada Day concert and Fireworks.  I was determined to do so despite the migraine I had that morning.  One of those times where I simply demand I do something I want for a change and not let my fricken head make the choice.  Migraine basically was kept at a low level so that is all good.  Loved the fireworks… and some of them remind me so much of my migraine visual aura that I have to point it out, ‘There! That one!  Just like a migraine aura!’.  Not like anyone can understand what that looks like unless you find something that does. Click Here to Visit the Store and find Much More…. Now here is the thing.  Where they do the…
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